We are here for you…..

You are not alone. Many patients who experience Stevens Johnson Syndrome (SJS) are told that they will never meet another person who has experienced their reaction. In 1996, Jean McCawley founded the Stevens Johnson Syndrome Foundation after her daughter was striken by SJS.  Jean created the foundation to assure that no one needs to face SJS on their own.

For the past 25 years we have provided information and support to thousands of SJS patients, their families and loved ones.  Those that message us when the disease first strikes are often confused about what is happening and are seeking information. Others just want to talk with someone who understands the difficult experience that is SJS.

This website contains information about SJS for patients as well as information for medical professionals.  If you are looking for additional information or would like to speak with someone at the foundation, please email us at or visit our support group page on Facebook:

Stevens Johnson Syndrome Foundation – Home | Facebook

For our Canadian friends:

SJS Canada is a non-profit organization dedicated to spreading awareness about the extremely rare life-threatening medical illness.

Visit their page at:

SJS Canada

or visit their facebook page at StevensJohnsonSyndrome & TEN Canada – Home | Facebook

Founder and president Sonia W. Croasdaile, unfortunately was stricken with Stevens Johnson Syndrome and Toxic Epidermal Necrolysis in 2011. Her miraculous survival inspired her to create a well needed outlet to spread awareness about this life threatening medical illness.

California SJS/TEN Support group Kamna Narain – email

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