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August is Stevens-Johnson Awareness Month

August is SJS Awareness Month. There are many ways you can help celebrate SJS Awareness Month, such as:

Joining our SJS Warrior Campaign
Passing the SJS ribbon
Wearing blue on August 18th
Requesting a proclamation letter

You can help spread SJS awareness by contacting your governor and requesting a proclamation naming August SJS Awareness Month. Here is a sample proclamation letter:

Sample Proclamation Request Letter

Proclamation sample wording:

Whereas, Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis, another form of SJS, are severe adverse reactions to medication; and,

Whereas, almost any medication, including over-the-counter drugs, can cause SJS; and,

Whereas SJS affects people of all ages, and a large number of its victims are children, and

Whereas, according to the New England Journal of Medicine, over 2 million Americans fall ill and are hospitalized every year from taking these recommended drugs, and of those 2 million that are admitted, over 140,000 are never released; and,

Whereas recognizing the early symptoms of SJS and prompt medical attention are the most invaluable tools in minimizing the possible long-term effects SJS may have on its victims;

Whereas the health and safety of our citizens is of utmost importance and the State of ____________ is committed to raising awareness and supporting all efforts to minimize the effects of life-threatening diseases such as Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis.

Event Dates

SJS Memorial Day | August 15

Remembering those who lost their lives to SJS/TEN.

Move-A-Thon | August 14-16

Run/walk/bike at your convenience, any time, anywhere,

between August 14-16 2026.

Celebrate your accomplishment by sharing on social

media! #WalkForSJSAwareness

Donations to the Stevens-Johnson Syndrome Foundation

can be made through Network for Good.

World Stevens-Johnson Syndrome Awareness Day | August 18

This is a time to shine a light on SJS as a growing health concern. To commemorate this, the Stevens-Johnson Syndrome Foundation started the Let It Glow Blue for SJS Awareness Campaign. Wear Blue, change your outside porch light to a blue bulb.

Stevens-Johnson Syndrome Conference | TBA

We will post more information as it becomes available.