Global Resources


SJS Canada is a non-profit organization dedicated to spreading awareness about the extremely rare life-threatening medical illness. Click here to visit their page:

SJS Canada

Stevens Johnson Syndrome is not limited to any one population in any one country. It is a devastating illness that strikes everywhere. Increasingly, we see SJS victims from other countries reaching out to us for resources and information. These resources stand ready to help victims deal with the effects of Stevens Johnson Syndrome. We hope you find this  resource center helpful

Find a burn center USA

Dutch Burns Foundation

European Tissue Repair Society

International Society for Burn Injuries (ISBI)

Nederlandse Vereniging voor Brandwondenzorg (Dutch Burn Care Society)

Country Specific Resources

Great Britain

British Burn Association
Contact Name: C. Reade
Organisation address: Burn Centre, Acute Block, Wythenshawe Hospital, Southmoor Road, Manchester, M23 9LT
Tel number: +44 (0)161 291 6323 Fax number: +44 (0)161 291 6323

Disfigurement Guidance Centre
Contact Name: Jon Rouse
Organisation address: PO BOX 7, Cupar, Fife, KY15 4PF, Scotland, UK
Tel number: 01334 839084 – 01337 870281 Fax number: 01334 839105 – 01337 870310

Burn Survivors Association – UK
Contact Name: Terry Everitt
Organisation address: 11, Caterwood, Billericay, CM12 0AP, UK
Tel number: 01277 631086 Fax number: 0208 591 9640

Burns Unit Group Support (B.U.G.S.)
Contact Name: Sister Janet Tromans/Staff Nurse Sue Smith
Organisation address: Salisbury District Hospita, l Area:Odstock Road, Salisbury, SP2 8BJ, UK
Tel number: 01722 336262 ext.2550

Children’s Fire and Burn Trust
Contact Name: Ted Brassey
Organisation address: 38 Buckingham Palace Road, London, SW1W 0RE, UK
Tel number: +44 (0)20 7233 8333 Fax number: +44 (0)20 7233 8200

Manchester Burns Advisory Group
Contact Name: Jacky Edwards
Organisation address: Southmoor Road, Burn Centre, Wythenshawe Hospital, Wythenshawe, Manchester, M23 9LT, UK
Tel number: 0161 291 6323 Fax number: 0161 291 6323

McIndoe Burns Support Group
Contact Name: Yvonne Kennard
Organisation address: Queen Victoria Hospital NHS Foundation Trust, Holtye Road,
East Grinstead , West Sussex, RH19 3DZ,
Tel number: 07732 295310

Association des Brûlés de France
Contact Name: Paul Villain
Organisation address: 46, quai de la Loire, Paris, F-75019, Paris, France
Tel number: +33 142 022 501 Fax number:+33 142 403 720

Association de Brûlologie des Caraïbes
Contact Name: Dr Didier CHATOT-HENRY
Organisation address: C.H.R.U. La Meynard, B.P. 632, Fort-de-France, F-97261, France
Tel number: +33 596 552 045 Fax number: +33 596 758 481

Gruppo Assistenza Ustionati
Contact Name: Mario Audisio
Organisation address: C.T.O., Torino, Italia
Tel number: 338 / 6911609 – 339 / 7714639

FEUERBALL Verein für brandverletzte Kinder und Jugendliche
Contact Name: Christine Loidl – Obfrau
Organisation address: 186, Pischelsdorf, 8212, Austria
Tel number: 0043/3113/5115-0 Fax number: 0043/3113/5115-15

VZW Vriendenkring van brandwondenpatiënten van het UZ Gent
Contact Name: Antoine Stadeus
Organisation address: Brandwondencentrum UZ Gent
Area: De Pintelaan 185, P8 1° verdieping, Gent, 9000, Belgie
Tel number: +32 (0)9 240 34 99 – +32 (0)9 240 34 90

Belgische Brandwonden Stichting
Contact Name: Johan de Jager
Organisation address: Frans Landrainstraat, 43, Wezembeek-Oppem, 1970 Brussel, Belgie
Tel number: 02/649 65 89 Fax number: 02/644 04 02

National Burn Camp
Contact Name: Sandra Hendrickx
Organisation address: Langehoevestraat 107, Begijnendijk, 3130, Vlaams-Brabant, Belgie

Contact Name: Petra Lubosch
Organisation address: Rietschelstr.33, Worms, 67549, Rheiland-Plalz, Deutschland
Tel number: +49-(o)6241-308 99 88 Fax number: +49-(o)6241-308 99 88

Hungarian Burn Association
Contact Name: Dr.Éva Csorba
Organisation address: MRE Bethesda Hospital, Burn Centrum, Bethesda u. 3-5, H -1146, Budapest, Hungaria

Associação Amigos dos Queimados
Contact Name: Carlos Manuel Franco Campos
Organisation address: Av. Bissaya Barreto, 3000-075, Coimbra, Portugal
Tel number: (00 351) 239 400 669 Fax number: (00 351) 239 482 061
Mobilphone: (00351) 966 220 975

Flavie: Association suisse romande des victimes de brûlures
Contact Name: Alexandre Dubuis
Organisation address: du Bugnon 46, Lausanne, 1011, Suisse
Tel number: 021/314.25.00

Sociéte Franç¡ose des Etudes et Traitements des Brûle (SFETB)

Spanish Society of Burn and Plastic Surgery for Nurses

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