We are here for you…..

You are not alone. Many patients who experience Stevens Johnson Syndrome (SJS) are told that they will never meet another person who has experienced their reaction. In 1995 Jean McCawley founded the Stevens Johnson Syndrome Foundation after her daughter was striken by SJS.  Jean created the foundation to assure that no one needs to face SJS on their own.

For the past 20 years we have provided information and support to thousands of SJS patients, their families and loved ones.  Those that call us when the disease first strikes are often confused about what is happening and are seeking information. Others just want to talk with someone who understands the difficult experience that is SJS.

This website contains information about SJS for patients as well as information for medical professionals. We have included a list of regional support groups with contact information. If you are looking for additional information or would like to speak with someone at the foundation, please give us a call at (303) 635-1241. Our office hours are Monday -Thursday  9am to 4pm MST.

Stevens Johnson Syndrome Foundation

Office hours: Monday – Thursday  9am to 4pm MST 

Due to the high volume of calls regarding the Covid19 Vaccine we recommend contacting us by email.

Phone: (303) 635-1241

Email: sjsupport@gmail.com

Facebook: Stevens Johnson Syndrome Foundation


 List of Regional Support Group Facilitators [click here]