For Medical Professionals

 

 

Ophthalmologic management

Very important vision saving treatment: The Ophthalmologic Management of Acute Stevens-Johnson Syndrome, By Darren G. Gregory, MD. To view full article, please [click here]

 

Amniotic membrane transplantation for management of acute SJS and TEN

http://www.eyeworld.org

 

IVIG treatment

If started during the beginning stage of SJS IVIG (immunoglobulin treatment) has been successful in treating some SJS patients. It has shortened the course and limited side effects. Read about IVIG Treatment

 sjsupport.org/pdf/brett.pdf

 

Stevens Johnson Syndrome & Toxic Epidermal Necrolysis

Stevens Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are now believed to be variants of the same condition, distinct from erythema multiforme. SJS/TEN is a very rare, acute, serious, and potentially fatal skin reaction in which there is sheet-like skin and mucosal loss. Using current definitions, it is usually, possibly always, caused by medications.

Full article on SJS/TEN. DermNet NZ

 

Toxic epidermal necrolysis and Stevens-Johnson syndrome

Thomas Harr* and Lars E French   http://www.ojrd.com/content/5/1/39

 

 SCAR Conference Stevens – Johnson Syndrome

http://admin.imng.com/fileadmin/content_pdf/san/scms_pdf/SCMS_vol33_no1_Epidemiology_of_severe_drug_hypersensitivity.pdf

 Prevention of Vulvovaginal Sequelae in Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3218548/

 

Products designed by healthcare professionals

Solace Nutrition is a medical nutrition company founded with the intent to develop clinical nutrition products designed for individuals living with chronic disease. Solace Nutrition is dedicated to provide products that meet the nutritional needs that change throughout the lifecycle of individuals living with a chronic disease.

 

Brandeis studies evaluate visionary approach to improving eyesight

A novel scleral lens developed in Boston proves clinically beneficial in patients who have failed conventional therapies. To view full article please: [click here].

 

Burn unit treatment of three Stevens Johnson Syndrome cases with Cryopreserved Allograft

Three cases of Stevens-Johnson syndrome are described. This syndrome is characterized by extensive loss of tffe epidermis and other complications. The cutaneous lesions are similar to second-degree burns in their development, and they benefit from temporary coverage with cryopreserved allografts, as may be performed in a Burns Centre: [click here].

 

Chronic lung disease following Stevens – Johnson Syndrome:

http://www.indianpediatrics.net

 

Stem cell transplantion of ocular surface diseases

http://www.oculist.net/

 

Saving Ethan with Dr. Richard Gamelli, Loyla Burn & Shock Trauma Institute

http://www.youtube.com/

 

Saving Ethan’s Vision

/Dr. Charles Bouchard, chair of the Department of Ophthalmology at Loyola, and Dr. Amy Lin talk about the blinding complications of SJS and an amniotic membrane treatment available here at Loyola that saved Ethan’s sight.

http://www.youtube.com

 

 

Contact us

P.O. Box 350333
Westminster, CO 80035
Tel - (303) 635-1241
Fax - (303) 648-6686
Email - sjsupport@aol.com


The Stevens Johnson Syndrome Foundation (Julie Foundation for allergic drug reactions) is a non-profit organization. The purpose of the foundation is to provide the public and medical communities with information on adverse allergic drug reactions.

Our goal is to make the public aware of adverse reactions, so that a quick diagnosis may be made and the offending drug stopped as soon as possible.