Blog

SJS Awareness Car show in Klamath Falls, OR

Lithia Ford of Klamath Falls Oregon & the Chapman Family's 2014 SJS Awareness Car Show May 17 - 10 am to 3 pmto support the Stevens - Johnson Syndrome Foundationfor information on how you can help  please contact Donna Chapman 541 883-3699

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SJS/TEN International Registry

SJS/TEN Worldwide Registry If you are an SJS/TEN Patient or caregiver of a  patient please help us track SJS/TEN cases  by completing our online registry!  Click here to register: http://www.sjsupport.org/htmldata/sjsurvey.html

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SJS Awareness Car Magnets

SJS Awareness Ribbon Car magnets are now available for 5.00 each!Mail in your order form today!Help spread SJS Awareness: click here for order form and more informationhttp://www.sjskidsupport.org/file/SJSAwarenessRibbonCarMagnetsorderform.pdf  

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High Dependency Ebook The story of SJS/TEN Survivor Stuart Doyle

High Dependency is the true story of SJS/TEN survivor Stuart Doyle  who has literally lived through hell. Spontaneous Combustion sounds like an urban myth but it can and does happen! Stuart tells the compelling tale of how his life went up in flames and the immense difficulties he faces in building anew on those ashes.http://www.amazon.com/High-Dependency-ebook/dp/B00CW17CGU/ref=sr_1_1?ie=UTF8&qid=1369654162&sr=8-1&keywords=high+dependency 

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August is SJS Awareness Month

August is Stevens - Johnson Syndrome Awareness Month!You can help by writing your governor to request a proclamation declaringAugust SJS Awareness Month in your state!Your help is greatly appreciated!Please email the SJS Foundation sjsupport@aol.com for proclamation wording!

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SJS Awareness Car Show Klamath Falls, OR

Stevens - Johnson Syndrome Awareness Car ShowKlamath Falls, ORMay 18th, 2013  from 10:00am  - 3pm! For more information contact Donna Chapman at 541-883-3699.  Registration forms can be picked up at Lithia Ford on Washburn Way aand Chapman’s Farm Repair 822 Spring Street.

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Miles for Madison

Miles for Madison 5k Run/Walk and FREE Kids Fun Run from Norwayne High School on April 6, 2013.  All proceeds will benefit Stevens-Johnson Syndrome Foundation You can register for Madison’s 5k/Run/Walk  online at: http://www.rsracingsystems.com/Search/event.aspx?id=16871 Click here :MilesforMadisonEntryForm Click here MilesforMadisonSponsorshipForm2013   Madison’s story: My name is Madison and I am 10 years old and in the fifth grade. 

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Petition for FDA Mandatory Adverse Reaction Reporting System!

Tell the FDA we need a mandatory adverse drug reaction reporting system by medical professionals of all severe drug reactions including Stevens-Johnson Syndrome!  Over 200 thousand people each year die from adverse drug reactions but the cases are probably higher due to a lack of reporting! No one has an accurate count of SJS because there is NO mandatory reporting system required by medical professionals. Only a voluntary site for patients. A mandatory

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Free Throws for Hope

To raise awareness for severe adverse reactions, like the one he experienced last spring, Toxic Epidermal Necrolysis / Stevens Johnson Syndrome survivor Jonah Lake is presenting Free Throws for Hope, a 24-hour free throw challenge on Friday August 23 at The Gap Family Center. Less than 1 percent of all drug reactions in the United States are reported to the FDA yet severe allergic drug reactions account for over 100,000 deaths per year in hospitalized

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Welcome to our new website

In honor of the 2012 Awareness Month we are celebrating with the launch of our new and improved website. Please be aware that this site is a work in progress and we are currently updating infomation.

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