My story begins in September 2005. My name is John Hornberger age 50 at the time. I was clearing land for a new home when I was stricken. I thought I was getting poison ivy so I didn’t go to the doctors or ER. This rash had gone on for several days, while I was working at the land I really felt sick. I went to my sister’s house only several hundred feet away. She took one look at me and said she was taking me to the hospital. The doctor on duty in the ER said...[view full story]

My name is Patti Davison. I am one of the Colorado Facilitators. My son Danny had SJS a little more than a year ago. He is my hero!!!

To view full article please: [click here]

The Stevens Johnson Syndrome Foundation congratulates Alexandria "Alley" Reed on her graduation from high school. Alley choose Stevens Johnson Syndrome as her senior project. Alley was deeply affected when her Uncle John suffered from TEN. She used her senior project as an opportunity to educate her teachers and classmates about this devastating syndrome. Alley plans to attend Bloomsberg University in Bloomsberg, PA and major in special education. Congratulations Alley we are so proud of you!

The Stevens Johnson Syndrome Foundation would like to thank Extreme Makeover American Dream Edition and Denver 7 news for their generous donations. Thank you ABC for helping the SJS Foundation during these hard economic times!

As many of you are aware, Julie's SJS was caused by Phenobarbital to control pediatric epilepsy. If only we had been offered the Ketogenic diet first. Julie started on the diet after she suffered SJS which evolved into TEN and 78 grandmal seizures the longest lasting 50 minutes. For those of you with children with epilepsy please take a few minutes to watch as Meryl Streep explains the Ketogenic Diet. For us it was a lifesaver!

YouTube - Meryl Streep introduces the ketogenic diet

August is SJS Awareness month and your help is greatly needed. Please take the time to write to your states governor requesting a proclamation declaring August as Stevens Johnson Syndrome Awareness month!

A sample proclamation letter is available on our website at here

We would like to thank our support group facilitators for volunteering to help raise awareness of SJS and for the support you have given so many. We now have 34 facilitators in 19 states and 8 countries.

To our friends in Mexico, please welcome Veronica Ferreyro Salazar and Maria Teresa González Méndez. These ladies both have children that have suffered from SJS and TEN. They recently developed a Stevens Johnson Syndrome website in Spanish and also translated the SJS Fact Sheet! This has been a Godsend! You can access the fact sheet from their site at : www.sindromestevensjohnson.com or at www.sjsupport.org
Thank you ladies!

We also welcome Cindy McNally in Michigan and Cheri O'Neill in Minnesota. Cheri has started an SJS support network that we are all greatly enjoying.

Here you can share stories, support and pictures. This is a great group! Also please join the SJS Foundations Online support group

Don't forget Canada, and the wonderful work of Helen Milne. Please visit her blog.

Prayers needed:
Please take some time to visit the SJS website's prayer list. We have many new patients that need your well wishes. www.sjsupport.org

SJS Kids Support Website:
Please visit www.sjskidssupport.org. This is a great site to explain Stevens Johnson Syndrome to little ones. There is also a picture page of SJS kids and another page for SJS big kids. If you would like to add a your picture or your child please email sjsupport@aol.com and reference for SJS KIDS Page in the subject line. We look forward to seeing you!