Stevens Johnson Syndrome Foundation
     Stevens Johnson Syndrome

December, 2006

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Happy & Healthy Holiday's

Wishing you and your family a happy, healthy and safe holiday season from all of us at SJS Foundation!

Please take a moment to visit our website, Categories have been added for easier navigation. Special thanks to, Jean McCawley and Amit Khatri!

Montel Williams help’s
Spread SJS Awareness!
By, Jean McCawley

Over the past 11 years the Stevens Johnson Syndrome Foundation has strived to promote SJS awareness. We’ve printed fact sheets, brochures, issued press releases and interviewed with local news agencies in attempts to spread the word. We’ve worked at local fairs handing out fact sheets only to find them thrown in trash cans and littering fields. We’ve been turned down for proclamations for SJS Awareness month, ignored off by government agencies and foundations for funding into research, all due to the “rare word”!

Most physicians are taught they will never see an SJS case in their entire medical career. Thousands of SJS victims go misdiagnosed suffering horrific side effects due to untimely treatment. Many lose their battle due to the lack of knowledge of health care providers and public awareness. The SJS prayer list continues to grow as more people fall victim to this nightmare. [more]

To view a slide show of the event please: [click here]

By, Marlene Kerber

All my life, I always looked at my cup as literally empty. I do have a great life, not perfect, not pain free, and not without baggage of just plain old living experiences, life throws our way.

I have had so many things go wrong with my life. But this holiday season is a time to be thankful. This sounds so clich, however when I have done the worst suffering in my life when I got TEN, it truly gave me one of the best life's that I would have never dreamed that could happen. [more]

Tips from SJS Patients

I just wanted to share this in case other SJS patients could benefit from it. My eye doctor put me on large doses of Flax seed oil capsules each day. It is supposed to help keep eyes more lubricated, and aid in tear production, and help decrease inflammation. I take 3,600 mg.(or 3 capsules 1,200 mg each) 2-3 times per day (am/noon if needed PM). I notice a big difference! Especially if I don't take it for a day or two. My doctor. said it's all omega-3 oils (like in fish), and also good for your heart, skin, other stuff. He said it's very safe with no known side effects (and no reported cases of sjs), all natural. Of course anyone should check with their eye doctor first, and for dosage also. I have taken it for about 4 yrs now. It is important to get a good brand from health, vitamin section of store. It can take about 2-3 weeks of taking it 2-3 times a day before you will notice a difference so don't get discouraged right away.

I hope you can pass this info on, as it may help many SJS patients greatly, if you didn't already know about it.
Thanks, M'lissa

Freeware for blind
& visually-impaired

Very helpful site for SJS Patients that suffer eye damage!

At we have freeware for blindness and visual impairment special needs throughout the world. It is free only to individual blind people for their personal use at home.
Download the Thunder ScreenReader talking software and your modern XP or Vista computer will be immediately usable by someone who can't see to read the screen.

Special Offer for
SJS Patients from Windrams!

Get the dark glasses you've always wanted with the wind protection you need. [Click here] for detail information on Windrams.

How you can help SJS Foundation?

Special thank you to the following for their generous donations! [Click here] for the list.

Now you can donate your vehicle to help the SJS Foundation Through Vehicles for charity, the SJS Foundation will receive a check once the car is repaired and sold at auction. Your donation through vehicles for charity is tax deductible. [ Click here ] for more information on how you can help.

If the information contained in our website was helpful to you, please be aware that it has been made available for public access strictly through volunteer effort and funding. The Stevens Johnson Syndrome Foundation is a 501(c)(3) non-profit organization dedicated to promoting public awareness to adverse drug reactions as well as to provide immediate information regarding treatment of those suffering from this devastating affliction. Please help us keep this website running. Your tax-deductible donations will help us to continue this good work.
[ Click here ] to make your generous contribution to SJS Foundation..!!

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Articles or advertisements referring to specific programs, services and/or products do not constitute endorsement by the Stevens Johnson Syndrome Foundation. Articles involving medical aspects of SJS are not intended to be medical advice and readers are cautioned not to make any changes in their treatment based in information without consulting with a physician.
Information for Donors: The Stevens Johnson Syndrome Foundation is a 501 (C) (3) tax-expempt corporation. All donations to the SJS Foundation are tax-deductible. [ Click here ] for Tax information.
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