The Stevens Johnson Syndrome Foundation would like to thank Sarah Boxer for our new section on anti-bullying. This page includes a comprehensive list of resources. Many SJS/TEN survivors are left with lifelong disabilities. These children are often victimized by other students and often even teachers are guilty of this unacceptable behavior. Sarah has researched this subject and provided us with information to help us stop this abuse. The information on the site addresses students, teachers and administrators. [Click here] for detail.

Sarah learned of SJS/TEN first hand when her younger sister Elizabeth developed TEN from over the counter ibuprofen. The entire Boxer family has since dedicated themselves to helping spread Stevens Johnson Syndrome Awareness!

If you or your loved one suffered with Stevens-Johnson Syndrome or Toxic Epidermal Necrolysis, we are asking you to participate in this very important Project Please write a compelling letter about your experience with SJS/TEN. If possible please include pictures before, with SJS/TEN and after. This applies to everyone! Canada, Ireland, Sweden, England, where ever you are please participate. SJS is a worldwide epidemic that needs to be recognized. We plan on adding a cover letter and sending them in one big envelope to the White House.

The dead line is June 30th, 2010.
Please mail letters to:
SJS Foundation
PO BOX 350333
Westminster, CO 80035-0333

Or email to:
sjsupport@aol.com
REF: Letter to the White House

In early September we received a call from a producer from True Entertainment. They were interested in reenacting a case of Stevens - Johnson syndrome. Many stories were submitted and to our surprise they chose Julie McCawley, we had been told they were looking for an adult. On October 21st we began filming. It’s amazing how much is involved in making a segment that will only last approximately 30 minutes. Early on a very cold and snowy morning we arrived at a Studio in Denver to film interviews. These would later be used to narrate different hospital scenes. Family and friends along with Dr. Bernard Cohen of Johns Hopkins and Lois Tyler (Retired Pediatric Nurse) volunteered their time to tell Julie’s story. Lois is the actual nurse that saved Julie’s life. Everyone from True Entertainment was great. They were very patient and worked very hard to pull it all together.

View full article: [PDF]

To view a slide show: [click here]

Once again it’s that time of year where we start our letter writing campaign to all state, and global government officials. In the United States we ask that you help by writing to your local governor’s office requesting a proclamation declaring

We all need to take medicine at some time in our lives, but do we always really need these drugs? Global spending on prescription drugs topped over 646 billion dollars in 2006. Pharmaceutical companies spend approximately $19 Billion dollars on advertising. Pharmaceutical advertisements are on every station all day long, telling us to ask our doctor to prescribe this drug or that for whatever ails us. What happened to letting our doctors make a diagnosis before prescribing medications? While we need to be proactive in our healthcare there comes a time when we need to have input from our doctor.

View full article: [Word Document], [PDF]

On April 27, 2010 Colorado State Representative Cherylin Peniston presented the Stevens Johnson Syndrome Foundation with a tribute declaring August 2010 Stevens Johnson Syndrome Awareness Month. SJS/TEN survivor Julie McCawley was honored to open the 67th General Assembly by singing the National Anthem and her 10 year old sister Kerry McCawley led the pledge of Allegiance. We would like to thank Representative Peniston for her dedication in helping spread SJS Awareness in Colorado.

You can view the presentation at the following links: