Stevens Johnson Syndrome Foundation
     Stevens Johnson Syndrome

December, 2009

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Happy Holidays!

Wishing you and your family a Happy Holiday Season!
May the beauty of the Holiday Season be with you and yours throughout the year!

H1N1 Vaccine

What to do, what to do? The SJS Foundation has received numerous calls regarding the H1H1 vaccine asking what our recommendation is. We defer back to the CDC's guidelines. If you are in a high risk category; a child between the ages of 6 months to 24 years, have a chronic health disorder or compromised immune system or you are pregnant, the H1N1 vaccine is recommended. We suggest that you discuss this with your healthcare professional.

Please visit Centers for Disease Control and Prevention [click here]. At the time of this publication the Stevens Johnson Syndrome Foundation has had no reports of SJS related to the H1N1 vaccine.

SJS, and Its Effects on the Family
By, Jeanne Eggleston

When my brother and I learned our younger sister Kimberly had Stevens Johnson Syndrome all of our lives were changed forever. I remember a good portion of the summer spent in a hospital waiting room. The sterility of the entire place had the ability to make any young child uncomfortable and when accompanied by hard plastic chairs and nothing to do a kid couldn’t help but hate it.

To view full article please: [click here]

Ketogenic Diet Conference
learns about SJS

On November 14, 2009 16 year old Julie McCawley had the honor of speaking at the Ketogenic Diet Conference held in Scottsdale, Arizona, where she encouraged medical professionals to offer the Ketogenic Diet as a first form of therapy for children with epilepsy. Julie’s emotional introduction was given by Charlie Abrahams of the Charlie Foundation.

To view full article please: [click here]

SJS Announcements

Please continue to check our scrolling marquee on the front page of our website for a special announcement regarding SJS Awareness coming in early January.

First Lady Visits Denver
Promoting Mentoring Program
By Julie McCawley

On November 16th I rushed to get ready for one of the biggest days of my life. I was invited to have lunch with the first lady! I hurried and put my black and plaid dress with a pair of black leggings. I zipped up my black boots and grabbed my jacket and rushed to the car. The ride to school seemed to take forever; it felt as if we would never get there. When I walked through the front doors of my school and there were people standing at the door waiting for me. Congratulations said one man.

To view full article please: [click here]

Prayer list

Please visit the Stevens Johnson Syndrome Foundation prayer list located on the right hand side of our website. Most of us that have had a loved one with SJS believe that prayers work. Please take a few minutes to send your good thoughts and wishes to these patients.

Starting Over,
Learning To Live With Blindness
By, Jeanne Eggleston

Unfortunately, SJS can result in permanent vision loss and blindness in many of its survivors. Michelle Chacon, a mobility specialist for Adams County School District 50 teachers blind and low vision students. Michelle is also blind herself so she understands the difficulties her students face every day. Michelle educates her students in Braille literacy as well as cane training and is an advocate for her students within their school. We took a moment to talk to Michelle about many of the issues the newly blind survivor and their family will need to face in their new life and she was able to supply us with a wealth of information.

To view full article please: [click here]

In Appreciation!

The SJS Foundation would like to thank the following people for fundraising and promoting awareness of Stevens Johnson Syndrome. We appreciate all You do!

  • The McNally Family
  • Jill Kleeman
  • Elisabeth of Sweden
  • Matthew Moore
  • John Hornberger
We would also thank everyone for your continued support through our facebook cause and numerous donations. Please join our facebook cause at Causes on Facebook | Stevens Johnson Syndrome Awareness

As always thank you to all of our volunteers and support group facilitators.

How you can help SJS Foundation?

Holiday Shopping!
You can help the SJS Foundation this season by shopping online at the following online stores:
The SJS Foundation Cafepress shop has many new designs and products available.

Shop online from over 350 stores like Barnes & Noble, Gap, Office Max, 1-800-Flowers, REI, Orbitz, and more at! Up to 35% of each purchase will benefit us if you select the Stevens Johnson Syndrome Foundation as your cause of choice. So anytime you buy online, whether you are looking for Airline Tickets, Flowers, Clothes, Music, or anything else.... BuyForCharity.

You can also save money on your own purchases by using their great Coupons & Specials. Don't forgot to click below and enter "Stevens Johnson Syndrome Foundation" as a keyword on the search function, then start saving money on your purchases and help us raise funds in the process.

Anything you purchase online through will help the Stevens Johnson Syndrome Foundation.

Now you can donate your vehicle to help the SJS Foundation Through Vehicles for charity, the SJS Foundation will receive a check once the car is repaired and sold at auction. Your donation through vehicles for charity is tax deductible. [ Click here ] for more information on how you can help.

If the information contained in our website was helpful to you, please be aware that it has been made available for public access strictly through volunteer effort and funding. The Stevens Johnson Syndrome Foundation is a 501(c)(3) non-profit organization dedicated to promoting public awareness to adverse drug reactions as well as to provide immediate information regarding treatment of those suffering from this devastating affliction. Please help us keep this website running. Your tax-deductible donations will help us to continue this good work.
[ Click here ] to make your generous contribution to SJS Foundation..!!

Articles or advertisements referring to specific programs, services and/or products do not constitute endorsement by the Stevens Johnson Syndrome Foundation. Articles involving medical aspects of SJS are not intended to be medical advice and readers are cautioned not to make any changes in their treatment based in information without consulting with a physician.
Information for Donors: The Stevens Johnson Syndrome Foundation is a 501 (C) (3) tax-expempt corporation. All donations to the SJS Foundation are tax-deductible. [ Click here ] for Tax information.
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