{"id":1997,"date":"2017-03-28T01:36:45","date_gmt":"2017-03-28T01:36:45","guid":{"rendered":"http:\/\/sjsupport.org\/?page_id=1997"},"modified":"2024-06-19T04:33:45","modified_gmt":"2024-06-19T04:33:45","slug":"sjsten-medical-research","status":"publish","type":"page","link":"https:\/\/sjsupport.org\/?page_id=1997","title":{"rendered":"SJS\/TEN Medical Research"},"content":{"rendered":"

SUMMARY OF THE ACTIVE SJS\/TEN STUDIES AT VANDERBILT<\/strong><\/h3>\n

1. North American Therapeutics In Epidermal Necrolysis Syndrome Study:<\/span>
NATIENS is a clinical trial for Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis patients in the acute stage. This study aims to determine if two therapeutic treatments\u2013 cyclosporine and etanercept\u2013 are effective in improving the short-term outcomes of SJS\/TEN compared to the typical standard of care.<\/p>\n

2. SJS Survivor Study:<\/span><\/p>\n

The purpose of the SJS Survivor study is to recruit individuals who have been diagnosed with Stevens-Johnson Syndrome\/Toxic Epidermal Necrolysis (SJS\/TEN). This will be used to identify the nature and risk for long-term complications of SJS\/TEN and genetic risk factors associated with drug induced SJS\/TEN that will translate into improved pre-prescription preventive strategies and care of SJS\/TEN.<\/p>\n

This study requires review of medical records during the time of SJS\/TEN diagnosis and treatment. If you participate, you must submit your medical records to the study team to be reviewed by a panel of dermatologists. Individuals who continue in the study will be mailed an Oragene kit to their home and asked to provide a one-time oral saliva sample. Participants will also complete a series of questionnaires about their physical and mental health since their SJS\/TEN diagnosis.<\/p>\n

Who can participate?<\/strong> Adults & Children between the ages of 7 – 90 years old who have self-identified as having SJS\/TEN related to a medication\/drug they have taken.
Complete Vanderbilt’s survey at the link below: https:\/\/redcap.link\/sjstensurvivorstudy<\/a><\/p>\n\n\n

SJS\/TEN Survivor Testimonials – Participating in VUMC Research<\/h3>\n\n\n\n
Jean and Julie McCawley’s full testimonial<\/span><\/h5>\n\n\n\n

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