This year we received 10 proclamations declaring August 2011 Stevens Johnson Syndrome Awareness month. We will continue to write every year and eventually it is our hope that all 50 states will join us. We can't do it without your help. More states are requiring that a local resident make the request. The SJS Foundation would like to thank the following people for their participation in this year’s awareness project:

• Jessie Upshaw - Georgia
• Tara Stepanian of the Boston Foundation for Sight - Massachusetts
• Jill Kleeman - Maryland
• Becki Conway - Michigan
• Carrie Moore - New Jersey
• Nicole Chapman - Oregon
• Vicki Lown - South Carolina

We would also like to say a special thank you to John Hornberger of Pennsylvania. John worked diligently for months trying to convince his governor’s office to issue a proclamation. Even after they called him and said we don’t issue proclamations we only do resolutions John did not give up. He said "Then give us a resolution!" John called and emailed their office several times a week but his pleas continually fell on deaf ears. But John did not go away! He even told them, "You better find out about Stevens - Johnson Syndrome before it finds someone you love!" He was determined, and even though he did not get a proclamation, he did get the word out about SJS to the people of Pennsylvania. He called a local newspaper and was interviewed! Thank you John, you are awesome! You can read his story at here

UPDATE: John Hornberger never gave up and on September 28, 2011 he received a message from the General Assembly of Pennsylvania. Adopted, Sept. 27, 2011 with a vote of 199 to 0 the state of Pennsylvania adopted a resolution naming October 2011 Stevens - Johnson Syndrome Awareness month! It may not be August but we'll take it! Awesome job John! Thank you so much, your hard work has paid off. [SJS Awareness resolution]

To view the 2011 proclamations please click here

Due to the economy the Stevens-Johnson Syndrome Foundation has been struggling to survive. We have been continually turned down for grants and corporate donations. Many people have requested car magnets and wrist bands but unfortunately we are unable to purchase these products. We hope you will remember the SJS Foundation when you are doing your end of year donations. Your donation is tax deductible and very much appreciated and will help us to continue to be here for you!

Now you can donate your vehicle to help the SJS Foundation Through Vehicles for charity, the SJS Foundation will receive a check once the car is repaired and sold at auction. Your donation through vehicles for charity is tax deductible. [ Click here ] for more information on how you can help.

If the information contained in our website was helpful to you, please be aware that it has been made available for public access strictly through volunteer effort and funding. The Stevens Johnson Syndrome Foundation is a 501(c)(3) non-profit organization dedicated to promoting public awareness to adverse drug reactions as well as to provide immediate information regarding treatment of those suffering from this devastating affliction. Please help us keep this website running. Your tax-deductible donations will help us to continue this good work.
[ Click here ] to make your generous contribution to SJS Foundation..!!