The Stevens Johnson Syndrome Foundation has surveyed 1137 SJS and TEN Patients. The Foundation receives calls each day regarding after effects. Many patients will suffer one or more life long disabling conditions as a result of SJS/TEN. Below is a list of results pertaining to residual side effects secondary to Stevens Johnson Syndrome and Toxic Epidermal Necrolysis.

Alopecia - hair loss
Asthma
Blindness
Cataracts
Chronic bronchitis
Chronic cough
Chronic fatigue
Chronic obstructive pulmonary disease
Chronic pain
Cold sensitivity
Corneal ulcerations and abrasions
Death
Depression
Dermatitis
Diabetes mellitus
Digestive problems
Dry eye syndrome
Esophageal strictures
Excessive tearing due to dry eye syndrome and scarred tear ducts
Fibromyalgia
Fluctuating vision
Gastrointestinal problems
Hearing loss due to damaged cilia
Heat sensitivity
High bilirubin (Liver problems)
Hyper pigmentation scarring
Hyperhidrosis (excess sweating)
Hypersensitivity to new medications
Hyperthyroidism
Idiopathic thrombocytopenia purpura
Infertility
Irregular menstrual cycles
Irritable bowel syndrome
Joint pain
Keritinization
Kidney damage
Lid entropian
Liver problems
Loss of taste buds
Low immune system
Lupus
Mouth pain, sensitivity to certain foods, complaints of throat pain from carbonated drinks.
Multi-organ system failure
Myalgia
Neuropathy
Permanent loss of nail beds
Photophobia
Pores scarred
Post traumatic stress
Psoriasis
Rashes
Reduced perspiration
Rheumatoid arthritis
Scarring of tear ducts
Scarring of the bladder
Scarring of tongue
Septic shock
Sinusitis
Sjogren's syndrome
Skin problems, hard skin, itching, and peeling
Skin sensitivity to the sun
Stomach ulcers
Swallow disorder
Symblepheron
Teeth, loss of tooth enamel
Tooth decay, gum disease
Ulcerated colitis
Urethral scarring
Urinary tract scarring
Vaginal stenosis
Vasculitis
Weight loss
...