Stevens Johnson Syndrome Awareness Presentation
By, Jean McCawley
Close Window

On August 9th it was my honor to visit the Colorado Springs Utility Company. I was invited by Penny Kagey to give a presentation on Stevens Johnson Syndrome for their monthly safety meeting.

Penny knows all to well about SJS and TEN. In 2000 she lost her beloved mother, Kathleen Willis, to Toxic Epidermal Necrolysis. It has since been her goal to educate others into the warning signs of SJS and TEN.

Penny fought back her tears as she described to her co-workers the agony her mother experienced. She and her sister Patsy continually spread the word about SJS hoping to spare another family from the horror of Stevens Johnson Syndrome.

The presentation included the viewing the Diana Cignoni’s, 20 minute documentary, “Surviving SJS” and concluded with a question and answer period. The next day I received an email from Penny. The water department director was so impressed he was having the SJS Fact Sheet copied and distributed throughout the water department to over 1800 employees as part of their August Safety meeting newsletter. We are very thankful to Penny and the Colorado Springs Utilities for giving us this opportunity.