I got sick when I was three and a half years old. I wonder what it would like to run around and when I see my brothers and sister jump on the trampoline I feel bad for myself. Have you had this before? At school I play with friends sometimes they ask me to run. I always wanted to be a cheerleader and a baseball player and a cook but I was always shaking a lot. When I go to sleep I sometime get sick at night it really hard on me. It hard when I stay up in school because I don't have enough rest. I had a lot of surgeries because I was 99% blind and the doctors told my parents that I would not be able to see again. But they kept praying that I could get better, and I did. God told me that he'll keep me safe and He did. Now I love God and people. I made it through SJS. I know I keep my mom up at nights when I get sick, and she has to go to school or work in the morning, she never complains, only when I bother her she would say I should call my dad the next time I get sick. I stayed a lot in the hospital, and my dad and brother and sister and my mom is always there with me so I feel a good when they are there. When we go out people always stare at me and me why am I crying, I always tell them I'm not I have allergies or I'm sick and I'm not crying, I have to carry oxygen with me where I go. One thing I do not like is the fact that I have to take a lot of medications everyday and sometimes I don’t take them. I have osteoporosis that means my bones can break easily so I have to be so careful not to jump or play too rough because I can break a bone. I like when I go to the airport cause me and my mom get to pass all the people in the line and be the first to get on the plane, then I feel important. Now I am 10 years old and on the lung transplant list, and I have to go to California every 3 months to see Dr woo and the other doctors who are doing my transplant. I also get the see Dr. Milligan for my ears, and Dr Oneil and Dr Heinz for my eyes and Dr Woodward for my lung and Dr. Redleaf all the time. I still have a lot of problems but when I get my transplant I can do everything including running for field day. I am very talented I like to sing and write and read. it is hard for a kid to be as sick as I am but, there are some who are worst than me. I love my Daddy.

Love Ari