Name :: Rosemary Prillaman
Story :: I beleive this is what my sister died from in 1959. She was 3 years old and had a kidney infection that would not clear up. At that time the Dr. finally tried Sulfa drug treatment. She started blistering and was placed in the hospital where she continued to develope blisters. Dr's came from John Hopkins but to no avail. She lived 2 weeks. At that time they asked my parents if they could do a case study of her and my parents agreed in hopes that another child would not go through what she did. We were told that she was also totally blistered on the inside. I have also had a minor reaction to sulfa drug but for me it was immediate and received a shot to counteract the reaction.
Name :: c newman
Story :: I am a 35 year old mom and 6 years after my incident am still an emotional wreck. At 29 I went to my doctor for a pain under my rib. I thought it was from running. She said it was probably a tear and gave me a sample of BEXTRA to take for 5 days. My chart clearly said that I was allergic to sulfa drugs. I trusted my doctor was giving me something that would help me. After two days of taking the drug, I developed a high fever and blistery sores in the genital area. It hurt to use the bathroom and I was bleeding. I immediately went to the internet and looked up the drug only to find out it was sulfa. I stopped taking it and I went to my doctor. She said she didn't know it was a sulfa drug either and claimed I must have herpes. She said that a drug wouldn't have this kind of allergic reaction. Needless to say BEXTRA was removed from the market a few years after that.
I had been faithfully married and with my husband at this point for 10 years and neither one of us ever had an STD. She also said that she had never seen anything like it. She sent me to my GYN who said he had never seen anything like it either. He ran a herpes test, looking at my husband and myself as if one of us is cheating. It was the most humiliating thing I have ever been through. It came back negative of course! When he called me to tell me the results and he apologized and said it must be a reaction to the drug my other doctor gave me. I never got an actual diagnosis from a doctor, but after researching it, I know that it was SJS. I never went back to either doctor again. Now I hardly can take any otc or prescription medication without having a mild recurrence. As long as I stay off all meds, I am fine. I will never just trust what a doctor gives me ever again.
Name :: Hannah
Email_address :: pandachan90@yahoo.com
Story :: It started off like the flu but i started to get even more sick then i already was. i was over at my best friends house because my mom was gone out of state. it was my best friends mom that saved my life. she took me to the hospital and said "i think this isnt the flu but i have no idea what it is" so they took me into a room and i could barely talk because there were already blisters in my mouth i had to talk by writing on paper. i was checked into a room and was told that they were going to do some test to see what i have my mom i geuss got on the next flight back to idaho to come and see me. my step dad was the second person there. i was scared casue first i couldnt talk and now i was in the hospital not even knowing what the heck was going on. My mom got there about 3 hours later and this eye doctor came in and examined my eyes and said i know exactly what she has. It turned out that one of his personel had had SJS about a month ago before i had it. he anounced to the whole room "she has stevens johnson syndrom" and i wrote down "what the hell is that?" and no one could really explain it to me. i couldnt eat so i was on IV nutrition and i got worse i started getting blisters everywhere. and i could barely sleep with how many people came in to check on me. they were taking blood and giving me morphine and druging me up and they didnt even know what had made me so sick. but we figured it out in the end that it was my trileptal that made me so sick and i went home in about 3 weeks not looking my best and still feeling like crap. if you want to know more email me anytime.
Name :: Aman Garg
Email_address :: libran_amangarg@yahoo.co.in
Story :: I am Aman Garg, from India (Delhi).
I would like to discuss the case of my father.
For 25 Years he has been suffering from Dry Eye disease. It started with Catract, following the surgery for the same he was given a Sulpha Drug, due to which he developmed Dry Eye's and eventually lost his vision. Currently he is at a stage were he has very poor vision, wherein he can only see shadow's no colours.
He was adviced to use Artificial Tears which he used for 15 - 17 yrs. but not for past 5-7 yrs he has stopped using them, as he is doing Yoga everyday, which has benefiited him a lot, and has erased the need for Artificial Tears. Presently he is in condition where he can surrvive witout using Artificial Tears, aslo at times he is able to see colours, and read Bold Letters, such as the Heading's of Newspaper.
I am Hope full that I will get sugession, If there is any new Treatment that has been recently developed, for Sceral Lenses he visited the Mumbai Eye cenctre, which did not suited him, he is under going treatment at Rejender Prasad Eye Centre for Stem cell Plantation, things are not very promising.
Aman Garg, +919810774501
