Stevens Johnson Syndrome Foundation online support group

Scroll down to find the volunteer support group facilitator in your area. Groups are listed by state. If you would like to volunteer to be a SJS Support Group Facilitator please visit our volunteer page to download an application.

If you have any questions or concerns please contact us at: (303) 635-1241 OR email us at: sjsupport@aol.com

Important notes for Voluntary Support Group Facilitator:

Not every group does the same thing. Each group may have different results because of the individuals involved. Patients will receive encouragement by meeting others who have overcome SJS challenges like your own. Facilitators would meet with other SJS patients and share your feelings and experiences. Most patients have been told that they will never meet another person that has had Stevens Johnson Syndrome. As a support group facilitator you will be able to provide them comfort from knowing that they are not alone. You may be contacted by persons with a family member presently in the hospital with SJS. They are desperate to meet with someone that can help them understand what is happening. Please provide them with an SJS Fact Sheet.

The Foundation will provide your contact information on our website so interested parties may contact you directly. Facilitators are not to give medical advice. If asked for medical advice please refer the patient back to their healthcare provider.

Alaska

Dawn Bundick
Email: dbundick@gci.net

Arkansas

Debra Moulton
Email:  debbie.moulton369@gmail.com

California

Kamna Narain
Phone: (925) 216-4746
Email: kamnanarain@yahoo.com

Southern California, LA Area

Jamie Barrara
Phone: (951)  400-2983
Phone calls in Friday and Saturday 6pm to 9pm
Email: perrisafterdark@yahoo.com

Central California

Jeanne Packey
Phone: (559) 840-1327
Email: packey2468@yahoo.com

Colorado

Jean McCawley
Westminster, CO
Phone: (303) 635-1241
Email: sjsupport@aol.com

Connecticut

Grace Adley
Phone: (203) 430-9014
Email: sjsgrace64@aol.com

Florida

Sonia Francis-Berges
Email: carolcitymama@hotmail.com

Georgia

April Robinson
Email: april_jones1@hotmail.com
Atlanta, GA
Phone: (404) 968-3502

Tikeenia Campbell White
Savannah, GA
Home phone: (912) 401-0470 Cell – (912) 657-2984
Email: keeny333@yahoo.com

Illinois/Indiana

Kansas

Nichole Willis
Halsted, KS
Phone: (316) 833-3760
Email: nknbwillis@att.net

Massachusetts

Maryland

Jill Kleeman
Owings Mills, MD
Phone: (410) 356-8933
Email: msstationery2@comcast.net

Michigan

Jami L. Klein
Athens, MI
Phone: 269 317 -7289
Email: Jamilynn42@yahoo.com

Cindy McNally
Bay City, Saginaw Midland Area
Phone  (989) 737-8321 (home)
Email: cindywyliemcnally@aol.com

Minnesota

Cheri O’Neill
Detroit Lakes, MN
Phone: (218) 847-4773
Email: dance@tekstar.com

Missouri

Michelle Riley
Barnhart, MO
Phone: (636) 467-5790
Email: mdawnjames@yahoo.com

Nevada

Marla Daniel
Las Vegas, NV
Phone: (702) 349-8122
Email: marlafd@yahoo.com

Elizabeth Scarantino
Phone: (702) 457-6047
Email: elizabethscarantino@yahoo.com

New Jersey

Regina Adamousky
Edison, NJ
Phone: (908) 227-0128
Email: reg29320@yahoo.com

North Carolina

Mary J Quick
Durham, NC
Phone: (919) 384-9471
Email: Kirasims@yahoo.com

Ohio

Becky Lucas
Westerille, Ohio
Phone 1: (614) 891-1840 (home)
Phone 2: (614) 325-0417 (cell)

Oklahoma

Donna Pittman
Oklahoma City, OK
Phone: (405) 631-8022
Email: tyger4@aol.com

Oregon

Robert McMillen
Beaverton, OR
Phone: (503) 356-8511
Email: Bob@alltech1.com

Pennsylvania

Christine Ballentine
Philadelphia, PA
Phone: (215) 331-1055
Email: ballentine@blankrome.com

John Hornberger
Central Pennsylvania’s Susquehanna Valley
Phone: (570) 648-3208
Email: jrhorn@ptd.net

Mark Pilarski
Pittsburgh, PA
Phone: (724) 449-0093
Email: markdp21@yahoo.com

South Carolina

Pam Shields
Boiling Springs, SC
Phone: (864) 578-3142
Email: shieldsp@charter.net

Texas

Lisa Reyna
Houston, Texas
Phone: (713) 443-0518
Email: LLreyna@yahoo.com

Utah

Bridget Stout
Phone: (801) 214-5972
Email: bes120457@gmail.com

Virginia

Tellis (Ted) LaMar Jr.
809 Madison Ave. NW
Roanoke, VA. 24016
Email: tlamarjr@gmail.com

Deborah Bareika
Suffolk, VA
Phone: (757) 745-0135
Email: dbareika@yahoo.com

Wisconsin

Kendra Schmidt
Menasha, WI
Phone: (920) 427-3884
Email: Kendraschmidt@new.rr.com

Mexico

Veronica Ferreyro Salazar
Phone: (55) 4624-1478
Email: veronica@sindromestevensjohnson.com
Website: www.sindromestevensjohnson.com
Support Group: [Click here] for SJS Spanish Support Group
Place: Mexico City

Maria Teresa González Méndez
Phone: 52 984 803-2349
Email: maytegonzalezmendez@hotmail.com
Playa del Carmen, Quintana Roo

Adrian Navvaro
Phone: 33 1660 3256
Email: janux.gdl@gmail.com
Guadalajara, Mexico

Canada

Helen Milne
Victoria, BC
Phone/Fax: (250) 474-0898
Email: milnesjs@shaw.ca
Website: MilneSJS.com

France

Edgard Devaux
France
Phone: 08 11 03 46 48 , 06 87 57 59 99
Email: edgard_devaux@yahoo.fr - Website: Edgard Devaux SJS

Holland

Pieter Hoeberichts
Meeuwenlaan 49 2352 CR Leiderdorp
Phone: **3171 5231944
Mobile: **316 18554541 Email: sjsupport@live.nl

Italy

Zora
Phone: 349 505 72 32
Skype name: tatipapounette
Email: zora.kacemi@sjlionlus.it
Website: http://www.sjlionlus.it/

Scottland

Carol Kerr
Phone: 01292263699
Email: carol.kerrl@hscali.co.uk

Sweden

Elisabeth
Website: Swedish SJS/TEN Support Group

United Kingdom

Nadier Lawson
SJS Awareness UK
Email: info@sjsawareness.org.uk
Website: www.sjsawareness.org.uk
Mobile: 07507 85 55 58