SJS Group Facilitators

Stevens Johnson Syndrome Foundation online support group

 

Scroll down to find the volunteer support group facilitator in your area. Groups are listed by state or country

If you have any questions or concerns please contact us at: (303) 635-1241 OR email us at: sjsupport@aol.com

If you would like to volunteer to be a SJS Support Group Facilitator please complete the facilitator application at the following link:

http://www.sjsupport.org/htmldata/facilitators/support_group_facilitator.pdf

and mail to: 

          Stevens – Johnson Syndrome Foundation
          PO BOX 350333
          Westminster, CO 80035-0333

 

 

 

Arizona

Phoenix Area
Talley Snow
 602-696-6918
 talleysnow@yahoo.com

Arkansas

Debra Moulton
Email:  debbie.moulton369@gmail.com

California

Northern California Bay Area

Kamna Narain
Phone: (925) 216-4746
Email: kamnanarain@yahoo.com

Southern California, LA Area

Jamie Barrara
Phone: (951)  400-2983
Phone calls  Friday and Saturday 6pm to 9pm
Email: perrisafterdark@yahoo.com

Central California

Jeanne Packey
Phone: (559) 840-1327
Email: packey2468@yahoo.com

Colorado

Jean McCawley
Westminster, CO
Phone: (303) 635-1241
Email: sjsupport@aol.com

Janelle Bower
Fort Collins
phone 970-308-1751

Connecticut

Grace Adley
Phone: (203) 430-9014
Email: sjsgrace64@aol.com

Florida

Sonia Francis-Berges
Email: carolcitymama@hotmail.com

Georgia

April Reid
Email: april_jones1@hotmail.com
Atlanta, GA
Phone: (919) 451.7148

 
Charlie Dallavalle
Atlanta, GA
Phone 770 560-1776
 
 Tikeenia Campbell White
Savannah, GA
Home phone: (912) 401-0470 Cell – (912) 657-2984
Email: keeny333@yahoo.com 

 

 Hawaii

Jonah Lake
Phone: (717) 490-1204 
 

Idaho

Kelly Long
Boise, Idaho
If emailing please add SJS/TEN Question in subject line
Text or call 208-830-6353
 
 

Illinois/Indiana

 Heidi Maidl

Chicago, IL
219 759-3878
 

Kansas

Nichole Willis
Halsted, KS
Phone: (316) 833-3760
Email: nknbwillis@att.net

    

Louisiana

Renee LaCombe
Lafayette
337 852-5541
 
 

  Massachusetts

Christine Milne
Mass Eye and Ear
Unit Coordinator Emergency Room
(802)-272-5525

 

Nikki Richard
Phone: (978) 732-9911
 

Maryland

Jill Kleeman
Owings Mills, MD
Phone: (410) 356-8933
Email: msstationery2@comcast.net

 

Deborah Kaplan
German Town, MD
Phone 301 916-5788
 

Michigan

Cindy McNally
Bay City, Saginaw Midland Area
Phone  (989) 737-8321 (home)
Email: cindywyliemcnally@aol.com

Minnesota

Cheri O’Neill
Detroit Lakes, MN
Phone: (218) 847-4773
Email: dance@tekstar.com

Missouri

Michelle Riley
Barnhart, MO
Phone: (636) 467-5790
Email: mdawnjames@yahoo.com

 

Missouri, Kansas City, Nebraska & Iowa

Aaron Osborne

816 985 9940
ozzy584@hotmail.com

Nevada

Marla Daniel
Las Vegas, NV
Phone: (702) 349-8122
Email: marlafd@yahoo.com

Elizabeth Scarantino
Phone: (702) 457-6047
Email: elizabethscarantino@yahoo.com

New Jersey

Regina Adamousky
Edison, NJ
Phone: (908) 227-0128
Email: reg29320@yahoo.com

 

New York 

Suzanne Bell
Albany, NY
518 339-0060

   

North Carolina

Mary J Quick
Durham, NC
Phone: (919) 384-9471
Email: Kirasims@yahoo.com

Ohio

Becky Lucas
Westerille, Ohio
Phone 1: (614) 891-1840 (home)
Phone 2: (614) 325-0417 (cell)

Oklahoma

Donna Pittman
Oklahoma City, OK
Phone: (405) 631-8022
Email: tyger4@aol.com

Oregon

Robert McMillen
Beaverton, OR
Phone: (503) 356-8511
Email: Bob@alltech1.com

Pennsylvania

Christine Ballentine
Philadelphia, PA
Phone: 267-250-4492
Email: cmb3258@comcast.net.

John Hornberger
Central Pennsylvania’s Susquehanna Valley
Phone: (570) 648-3208
Email: jrhorn@ptd.net

Mark Pilarski
Pittsburgh, PA
Phone: (724) 449-0093
Email: markdp21@yahoo.com

Jonah Lake
Paradise, PA
Phone: (717) 490-1204
 

South Carolina

Pam Shields
Boiling Springs, SC
Phone: (864) 578-3142
Email: shieldsp@charter.net

Tennessee

Alicia Maya Donaldson
Martin, TN
Phone (731) 514-2953
 
Frances Cao
Antioch, TN
Phone (615) 360-0828

 

Texas

Joseph  Pytcher
Dallas, Texas
(817) 637-7001

 

Lisa Reyna
Houston, Texas
Phone: (713) 443-0518
Email: LLreyna@yahoo.com  

Utah

Bridget Stout
Phone: (801) 214-5972
Email: bes120457@gmail.com

Virginia

Tellis (Ted) LaMar Jr.
809 Madison Ave. NW
Roanoke, VA. 24016
Email: tlamarjr@gmail.com

Deborah Bareika
Suffolk, VA
Phone: (757) 745-0135
Email: dbareika@yahoo.com

 

Washington
 
Valerie OLeary
Bonney Lake, WA
Phone: 253 202-1456

 

Wisconsin

Kendra Schmidt
Menasha, WI
Phone: (920) 427-3884
Email: Kendraschmidt@new.rr.com

 

Canada

Helen Milne
Victoria, BC
250 474 0898

 

Sonia Whyte-Croasdaile
Founder/President
Sonia Whyte-Croasdaile Foundation for Canadians Against SJ & TEN
Online Community: www.skinergy.ca/SJS-TEN

 

Mexico

Veronica Ferreyro Salazar
Phone: (55) 4624-1478
Email: veronica@sindromestevensjohnson.com
Website: www.sindromestevensjohnson.com
Support Group: [Click here] for SJS Spanish Support Group
Place: Mexico City

Maria Teresa González Méndez
Phone: 52 984 803-2349
Email: maytegonzalezmendez@hotmail.com
Playa del Carmen, Quintana Roo

Adrian Navvaro
Phone: 33 1660 3256
Email: janux.gdl@gmail.com
Guadalajara, Mexico 

Australia

 
Mrs Jeannine Burt
Willoughby NSW AUSTRALIA
TEL: 0011 61 414 414 333
Local: 0414 414 333

 

France

Edgard Devaux
France
Phone: 08 11 03 46 48 , 06 87 57 59 99
Email: edgard_devaux@yahoo.fr - Website: Edgard Devaux SJS

Holland

Pieter Hoeberichts
Meeuwenlaan 49 2352 CR Leiderdorp
Phone: **3171 5231944
Mobile: **316 18554541 Email: sjsupport@live.nl

Italy

Zora
Phone: 349 505 72 32
Skype name: tatipapounette
Email: zora.kacemi@sjlionlus.it
Website: http://www.sjlionlus.it/

Scottland

Carol Kerr
Phone: 01292263699
Email: carol.kerrl@hscali.co.uk

Sweden

Elisabeth
Website: http://stevensjohnsonsyndrom.wordpress.com

 

Venezuela

Silvia Jo de Grados
0058 2123420329
 

United Kingdom

Nadier Lawson
SJS Awareness UK
Email: info@sjsawareness.org.uk
Website: www.sjsawareness.org.uk
Mobile: 07507 85 55 58 

 

Important notes for Voluntary Support Group Facilitator: Not every group does the same thing. Each group may have different results because of the individuals involved. Patients will receive encouragement by meeting others who have overcome SJS challenges like your own. Facilitators would meet with other SJS patients and share your feelings and experiences. Most patients have been told that they will never meet another person that has had Stevens Johnson Syndrome. As a support group facilitator you will be able to provide them comfort from knowing that they are not alone. You may be contacted by persons with a family member presently in the hospital with SJS. They are desperate to meet with someone that can help them understand what is happening. Please provide them with an SJS Fact Sheet.

The Foundation will provide your contact information on our website so interested parties may contact you directly. Facilitators are not to give medical advice. If asked for medical advice please refer the patient back to their healthcare provider.

Note* Facilitators opinions and views are not necessarily those of the Stevens – Johnson Syndrome Foundation. Please contact us with questions or concerns.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Contact us

P.O. Box 350333
Westminster, CO 80035
Tel - (303) 635-1241
Fax - (303) 648-6686
Email - sjsupport@aol.com


The Stevens Johnson Syndrome Foundation (Julie Foundation for allergic drug reactions) is a non-profit organization. The purpose of the foundation is to provide the public and medical communities with information on adverse allergic drug reactions.

Our goal is to make the public aware of adverse reactions, so that a quick diagnosis may be made and the offending drug stopped as soon as possible.