Email: Stevens Johnson Syndrome Foundation online support group

Scroll down to find the volunteer support group facilitator in your area. Groups are listed by state or country If you have any questions or concerns please contact us at: (303) 635-1241 OR email us at: sjsupport@gmail.com

If you would like to volunteer to be a SJS Support Group Facilitator please complete the facilitator application at the following link: http://www.sjsupport.org/htmldata/facilitators/support_group_facilitator.pdf and mail to:

          Stevens – Johnson Syndrome Foundation
          PO BOX 350333
          Westminster, CO 80035-0333

 

Arizona

Phoenix Area
Talley Snow
 602-696-6918
 talleysnow@yahoo.com

Arkansas

Debra Moulton Email:  debbie.moulton369@gmail.com

Corrine Throesch Email:  cthroesch.ct@gmail.com

Phone: 810 378-2890

California-

Northern California Bay Area

Kamna Narain

Phone: (925) 216-4746

Email: kamnanarain@yahoo.com

Southern California, LA Area

Fernando Araneta

Email –  FSAraneta@att.net Phone 949 235-6318

 

Jamie Barrara

Phone: (951)  229-2540 Phone calls  Friday and Saturday 6pm to 9pm

Email: perrisafterdark@yahoo.com

Central California

Jeanne Packey

Phone: (559) 840-1327

Email: packey2468@yahoo.com

Colorado

Jean McCawley

Westminster, CO

 

Phone: (303) 635-1241

Email: sjsupport@gmail.com

Connecticut

Grace Adley

Phone: (203) 430-9014

Email: sjsgrace64@aol.com

Florida

Sonia Francis-Berges

Email: carolcitymama@hotmail.com

Georgia

April Reid

Email: april_jones1@hotmail.com

Atlanta, GA Phone: (919) 451.7148

Charlie Dallavalle
Atlanta, GA
Phone 770 560-1776
 Tikeenia Campbell White
Savannah, GA
Home phone: (912) 401-0470 Cell – (912) 657-2984 Email: keeny333@yahoo.com
Kewana Bush
Savannah, GA
(919) 547-6991
Leomarie777@gmail.com

 

 Hawaii

Jonah Lake
Phone: (717) 490-1204

Idaho

Kelly Long
Boise, Idaho
If emailing please add SJS/TEN Question in subject line
Text or call 208-830-6353

Illinois/Indiana

Heidi Maidl

Chicago, IL
219 759-3878

Kansas

Nichole Willis Halsted, KS Phone: (316) 833-3760 Email: nknbwillis@att.net    Louisiana

Renee LaCombe
Lafayette
337 852-5541

 Massachusetts

Maine and New Hampshire

Christine Milne Mass Eye and Ear Unit Coordinator Emergency Room (802)-272-5525

 

Massachusetts

Nikki Richard
Phone: (978) 732-9911
Danielle Zecco
Scituate, RI
email:
Phone 774 253-4334

Maryland

Jill Kleeman Owings Mills, MD Phone: (410) 356-8933 Email: msstationery2@comcast.net

Deborah Kaplan
German Town, MD
Phone 301 916-5788

Michigan

Cindy McNally Bay City, Saginaw Midland Area Phone  (989) 737-8321 (home) Email: cindywyliemcnally@aol.com

Minnesota

Cheri O’Neill Detroit Lakes, MN Phone: (218) 847-4773 Email: dance@tekstar.com

Missouri

Michelle Riley Barnhart, MO Phone: (636) 467-5790 Email: mdawnjames@yahoo.com

Missouri, Kansas City, Nebraska & Iowa

Aaron Osborne 816 985 9940   email ozzy584@hotmail.com

Nevada

Marla Daniel Las Vegas, NV Phone: (702) 349-8122 Email: marlafd@yahoo.com

Elizabeth Scarantino Phone: (702) 457-6047 Email: elizabethscarantino@yahoo.com

New Jersey

Regina Adamousky Edison, NJ Phone: (908) 227-0128 Email: reg29320@yahoo.com

New York

Suzanne Bell
Albany, NY
518 339-0060

 

North Carolina

Mary J Quick Durham, NC Phone: (919) 384-9471 Email: Kirasims@yahoo.com

Ohio

Becky Lucas Westerille, Ohio Phone 1: (614) 891-1840 (home) Phone 2: (614) 325-0417 (cell)

Oklahoma

Donna Pittman Oklahoma City, OK Phone: (405) 631-8022 Email: tyger4@aol.com

Oregon

Robert McMillen Beaverton, OR Phone: (503) 356-8511 Email: Bob@alltech1.com

Pennsylvania

Christine Ballentine Philadelphia, PA Phone: 267-250-4492 Email: cmb3258@comcast.net.

John Hornberger Central Pennsylvania’s Susquehanna Valley

Phone: (570) 648-3208 Email: jrhorn@ptd.net

New Brighton, PA
Christie Inman
724 48-7565

Mark Pilarski Pittsburgh, PA Phone: (724) 449-0093 Email: markdp21@yahoo.com

Jonah Lake
Paradise, PA
Phone: (717) 490-1204

Rhode Island

Danielle Zecco
Scituate, RI
email:
Phone 774 253-4334

South Carolina

Pam Shields Boiling Springs, SC Phone: (864) 578-3142 Email: shieldsp@charter.net

Tennessee

Alicia Maya Donaldson
Martin, TN
Phone (731) 514-2953
Frances Cao
Antioch, TN
Phone (615) 360-0828

 

Texas

Joseph  Pytcher
Dallas, Texas
(817) 637-7001

Katie Niemeyer Austin, TX Email: katie@myhandana.com 5128253930

Lisa Reyna Houston, Texas Phone: (713) 443-0518 Email: LLreyna@yahoo.com

Utah

Bridget Stout Phone: (801) 214-5972 Email: bes120457@gmail.com

Virginia

Tellis (Ted) LaMar Jr. 809 Madison Ave. NW Roanoke, VA. 24016 Email: tlamarjr@gmail.com

Deborah Bareika Suffolk, VA Phone: (757) 745-0135 Email: dbareika@yahoo.com

Washington
Valerie OLeary
Bonney Lake, WA
Phone: 253 202-1456

 

Wisconsin

Kendra Schmidt Menasha, WI Phone: (920) 427-3884 Email: Kendraschmidt@new.rr.com

Canada

Helen Milne
Victoria, BC
250 474 0898

 

Sonia Whyte-Croasdaile
Founder/President
Sonia Whyte-Croasdaile Foundation for Canadians Against SJ & TEN
Online Community: www.skinergy.ca/SJS-TEN

Mexico

Veronica Ferreyro Salazar Phone: (55) 4624-1478 Email: veronica@sindromestevensjohnson.com Website: www.sindromestevensjohnson.com

Support Group: [Click here] for SJS Spanish Support Group Place: Mexico City

Maria Teresa González Méndez Phone: 52 984 1171392

Email: maytegonzalezmendez@hotmail.com Playa del Carmen, Quintana Roo

Please call.Cel. 9841171392 whatsapp email: maytegonzalezmendez@hotmail.com

 

Adrian Navvaro Phone: 33 1660 3256

Email: janux.gdl@gmail.com Guadalajara, Mexico oan

 

Africa

Joan Oben
Lagos
+2348089401569

Australia

Mrs Jeannine Burt
Willoughby NSW AUSTRALIA
TEL: 0011 61 414 414 333
Local: 0414 414 333

 

https://www.facebook.com/groups/SJSAustralia/

Australia – New South Wales

Carmen Heron O’keeffe
email  finni33@gmail.co
0426829584

New Zealand

Paihia Niki Cadenhead
karl.niki70@gmail.com
0064 9 402 6969 cell 0064 27 291 3790.

 

France

Edgard Devaux France Phone: 08 11 03 46 48 , 06 87 57 59 99 Email: edgard_devaux@yahoo.fr – Website: Edgard Devaux SJS

Holland

Pieter Hoeberichts Meeuwenlaan 49 2352 CR Leiderdorp Phone: **3171 5231944 Mobile: **316 18554541 Email: sjsupport@live.nl   India

Madhura Srinivas
Bangalore
Madhurasrinivas.n@gmail.com

 

Italy

Zora Phone: 349 505 72 32 Skype name: tatipapounette Email: zora.kacemi@sjlionlus.it Website: http://www.sjlionlus.it/

Scottland

Carol Kerr Phone: 01292263699 Email: carol.kerrl@hscali.co.uk

Sweden

Elisabeth Website: http://stevensjohnsonsyndrom.wordpress.com

Venezuela

Silvia Jo de Grados
0058 2123420329

United Kingdom

Nadier Lawson SJS Awareness UK Email: info@sjsawareness.org.uk Website: www.sjsawareness.org.uk Mobile: 07507 85 55 58

Important notes for Voluntary Support Group Facilitator: Not every group does the same thing. Each group may have different results because of the individuals involved. Patients will receive encouragement by meeting others who have overcome SJS challenges like your own. Facilitators would meet with other SJS patients and share your feelings and experiences. Most patients have been told that they will never meet another person that has had Stevens Johnson Syndrome. As a support group facilitator you will be able to provide them comfort from knowing that they are not alone. You may be contacted by persons with a family member presently in the hospital with SJS. They are desperate to meet with someone that can help them understand what is happening. Please provide them with an SJS Fact Sheet. The Foundation will provide your contact information on our website so interested parties may contact you directly. Facilitators are not to give medical advice. If asked for medical advice please refer the patient back to their healthcare provider. Note* Facilitators opinions and views are not necessarily those of the Stevens – Johnson Syndrome Foundation. Please contact us with questions or concerns.