If you would like to volunteer to be a SJS Support Group Facilitator please complete the faciliator application
and mail to:
Stevens Johnson Syndrome Foundation
PO BOX 350333
Westminster, CO 80035 USA
If you have any questions or concerns please contact us at: (303) 635-1241 OR email us at: firstname.lastname@example.org
Important notes for Voluntary Support Group Facilitator: Not every group does the same thing. Each group may have different results because of the individuals involved. Patients will receive encouragement by meeting others who have overcome SJS challenges like your own. Facilitators would meet with other SJS patients and share your feelings and experiences. Most patients have been told that they will never meet another person that has had Stevens Johnson Syndrome. As a support group facilitator you will be able to provide them comfort from knowing that they are not alone. You may be contacted by persons with a family member presently in the hospital with SJS. They are desperate to meet with someone that can help them understand what is happening. Please provide them with an SJS Fact Sheet.
The Foundation will provide your contact information on our website so interested parties may contact you directly. Facilitators are not to give medical advice. If asked for medical advice please refer the patient back to their healthcare provider.