Stevens Johnson Syndrome Foundation

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If you would like to volunteer to be a SJS Support Group Facilitator please complete the faciliator application

http://www.sjsupport.org/htmldata/facilitators/support_group_facilitator.pdf

and mail to:

          Stevens Johnson Syndrome Foundation

 

          PO BOX 350333

 

        Westminster, CO 80035 USA

If you have any questions or concerns please contact us at: (303) 635-1241 OR email us at: sjsupport@aol.com

 

Important notes for Voluntary Support Group Facilitator: Not every group does the same thing. Each group may have different results because of the individuals involved. Patients will receive encouragement by meeting others who have overcome SJS challenges like your own. Facilitators would meet with other SJS patients and share your feelings and experiences. Most patients have been told that they will never meet another person that has had Stevens Johnson Syndrome. As a support group facilitator you will be able to provide them comfort from knowing that they are not alone. You may be contacted by persons with a family member presently in the hospital with SJS. They are desperate to meet with someone that can help them understand what is happening. Please provide them with an SJS Fact Sheet.

The Foundation will provide your contact information on our website so interested parties may contact you directly. Facilitators are not to give medical advice. If asked for medical advice please refer the patient back to their healthcare provider.

 

Welcome

The Stevens Johnson Syndrome Support Group originated in May of 1995. The Group's purpose is to provide emotional support for people with Stevens Johnson Syndrome and Toxic Epidermal Necrolysis.

August is SJS Awareness Month. Please visit our facebook page to help spread awareness of severe allergic drug reactions. Find out about Steven's Johnson Syndrome before it finds out about someone you love.

News

  • Virtual SJS Symposium March 13th, 2021
  • COVID-19 Vaccination information
  • New Vanderbilt SJS Research study
  • COVID-19
  • Vanderbilt University is recruiting SJS/TEN patients for study

Support

Do you need more information?

Please see our Support page. We are here to take your call 9 am - 4 pm MST @ (303) 635-1241

Contact us

P.O. Box 350333
Westminster, CO 80035
Tel - (303) 635-1241
Email - sjsupport@gmail.com
Copyright 2014 · Stevens Johnson Syndrome Foundation