Global Resources

Stevens Johnson Syndrome is not limited to any one population in any one country. It is a devastating illness that strikes everywhere. Increasingly, we see SJS victims from other countries reaching out to us for resources and information. To help patients find the help they need, the SJS Foundation, through  advocate Sarah Boxer, has put together a comprehensive list of organizations and care centers in locations outside the United States. These resources stand ready to help victims deal with the effects of Stevens Johnson Syndrome. We hope you find this  resource center helpful

Burn Centers in the United States

Burn Patient Support Europe

World Burn Foundation

Belgian Burns Association

Brazilian Burn Society

Danish Burns Association

Dutch Burns Foundation

European Tissue Repair Society

International Society for Burn Injuries (ISBI)

Nederlandse Vereniging voor Brandwondenzorg (Dutch Burn Care Society)

Country Specific Resources

Great Britain

British Burn Association
Contact Name: C. Reade
Organisation address: Burn Centre, Acute Block, Wythenshawe Hospital, Southmoor Road, Manchester, M23 9LT
Tel number: +44 (0)161 291 6323 Fax number: +44 (0)161 291 6323
Email: bba@smuht.nwest.nhs.uk

Disfigurement Guidance Centre
Contact Name: Jon Rouse
Organisation address: PO BOX 7, Cupar, Fife, KY15 4PF, Scotland, UK
Tel number: 01334 839084 – 01337 870281 Fax number: 01334 839105 – 01337 870310
Email: Jon@timewarp.demon.co.uk

Burn Survivors Association – UK
Contact Name: Terry Everitt
Organisation address: 11, Caterwood, Billericay, CM12 0AP, UK
Tel number: 01277 631086 Fax number: 0208 591 9640
Email: burnsurvivorsassociation@hotmail.com

Burns Unit Group Support (B.U.G.S.)
Contact Name: Sister Janet Tromans/Staff Nurse Sue Smith
Organisation address: Salisbury District Hospita, l Area:Odstock Road, Salisbury, SP2 8BJ, UK
Tel number: 01722 336262 ext.2550
Email: info@burnsupportgroupsdatabase.com

Children’s Fire and Burn Trust
Contact Name: Ted Brassey
Organisation address: 38 Buckingham Palace Road, London, SW1W 0RE, UK
Tel number: +44 (0)20 7233 8333 Fax number: +44 (0)20 7233 8200
Email: info@childrensfireandburntrust.org.uk

Manchester Burns Advisory Group
Contact Name: Jacky Edwards
Organisation address: Southmoor Road, Burn Centre, Wythenshawe Hospital, Wythenshawe, Manchester, M23 9LT, UK
Tel number: 0161 291 6323 Fax number: 0161 291 6323
Email: cathy@mbag.co.uk

McIndoe Burns Support Group
Contact Name: Yvonne Kennard
Organisation address: Queen Victoria Hospital NHS Foundation Trust, Holtye Road,
East Grinstead , West Sussex, RH19 3DZ,
Tel number: 07732 295310
Email: kennardry@aol.com
France

Association des Brûlés de France
Contact Name: Paul Villain
Organisation address: 46, quai de la Loire, Paris, F-75019, Paris, France
Tel number: +33 142 022 501 Fax number:+33 142 403 720
Email: contacts@assocbrules-france.org

Association de Brûlologie des Caraïbes
Contact Name: Dr Didier CHATOT-HENRY
Organisation address: C.H.R.U. La Meynard, B.P. 632, Fort-de-France, F-97261, France
Tel number: +33 596 552 045 Fax number: +33 596 758 481
Email: webmaster@abcbrulurecaraibe.net
Italy

Gruppo Assistenza Ustionati
Contact Name: Mario Audisio
Organisation address: C.T.O., Torino, Italia
Tel number: 338 / 6911609 – 339 / 7714639
Email: audismar@tin.it
Austria

FEUERBALL Verein für brandverletzte Kinder und Jugendliche
Contact Name: Christine Loidl – Obfrau
Organisation address: 186, Pischelsdorf, 8212, Austria
Tel number: 0043/3113/5115-0 Fax number: 0043/3113/5115-15
Email: feuerball@telo.at
Belgium

VZW Vriendenkring van brandwondenpatiënten van het UZ Gent
Contact Name: Antoine Stadeus
Organisation address: Brandwondencentrum UZ Gent
Area: De Pintelaan 185, P8 1° verdieping, Gent, 9000, Belgie
Tel number: +32 (0)9 240 34 99 – +32 (0)9 240 34 90
Email: andre.scheershuis@uzgent.be

Belgische Brandwonden Stichting
Contact Name: Johan de Jager
Organisation address: Frans Landrainstraat, 43, Wezembeek-Oppem, 1970 Brussel, Belgie
Tel number: 02/649 65 89 Fax number: 02/644 04 02
Email: info@brandwonden.be

National Burn Camp
Contact Name: Sandra Hendrickx
Organisation address: Langehoevestraat 107, Begijnendijk, 3130, Vlaams-Brabant, Belgie
Email: info@nbc-belgium.com
Germany

CICATRIX e.V.
Contact Name: Petra Lubosch
Organisation address: Rietschelstr.33, Worms, 67549, Rheiland-Plalz, Deutschland
Tel number: +49-(o)6241-308 99 88 Fax number: +49-(o)6241-308 99 88
Email: lubosch@cicatrix.de
Hungary

Hungarian Burn Association
Contact Name: Dr.Éva Csorba
Organisation address: MRE Bethesda Hospital, Burn Centrum, Bethesda u. 3-5, H -1146, Budapest, Hungaria
Email: plasztika.csorba@axelero.hu
Portugal

Associação Amigos dos Queimados
Contact Name: Carlos Manuel Franco Campos
Organisation address: Av. Bissaya Barreto, 3000-075, Coimbra, Portugal
Tel number: (00 351) 239 400 669 Fax number: (00 351) 239 482 061
Mobilphone: (00351) 966 220 975
Email: cmcampos@netcabo.pt
Switzerland

Flavie: Association suisse romande des victimes de brûlures
Contact Name: Alexandre Dubuis
Organisation address: du Bugnon 46, Lausanne, 1011, Suisse
Tel number: 021/314.25.00
Email: info@flavie.ch

 

 

Sociéte Franç¡ose des Etudes et Traitements des Brûle (SFETB)

Spanish Society of Burn and Plastic Surgery for Nurses

 

Contact us

P.O. Box 350333
Westminster, CO 80035
Tel - (303) 635-1241
Fax - (303) 648-6686
Email - sjsupport@aol.com


The Stevens Johnson Syndrome Foundation (Julie Foundation for allergic drug reactions) is a non-profit organization. The purpose of the foundation is to provide the public and medical communities with information on adverse allergic drug reactions.

Our goal is to make the public aware of adverse reactions, so that a quick diagnosis may be made and the offending drug stopped as soon as possible.