Resources for patients with Ocular involvement.  Sight saving treatment for the acute stage of Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis include amniotic membrane grafts or prokera ring.

For proper treatment refer to the following websites:

The Ophthalmologic Management of Acute Stevens-Johnson Syndrome, By Darren G. Gregory, MD

BostonSight PROSE Treatment

BostonSight PROSE is a treatment to restore the vision of patients with complex corneal disease, enabling them to reclaim their lives. Visit the Boston Foundation for Sight Website.

BostonSight PROSE Network As of September 2012, there are twelve specialty eye care institutes located in top-ranked academic medical centers and clinics in the U.S. that offer PROSE treatment. Each PROSE provider is independently operated, managing scheduling, insurance and ongoing care.

Alkek Eye Center, Baylor College of Medicine, Houston, TX (713) 798-6109 www.bcm.edu/eye Bascom Palmer Eye Institute,

University of Miami, Plantation, FL (954) 465-2765 http://bascompalmer.org

 Boston Foundation for Sight, Needham, MA (781) 726-7337 http://bostonsight.org

Brooke Army Medical Center, San Antonio, TX (210) 916-9900 Doheny Eye Institute,

University of Southern California, Los Angeles, CA (323) 442-6337 www.doheny.org

Illinois Eye and Ear Infirmary, University of Illinois College of Medicine, Chicago, IL (312) 996-5410 www.uic.edu/com/eye Kellogg Eye Center

University of Michigan, Ann Arbor, MI (734) 232-8400 www.kellogg.umich.edu

Massachusetts Eye and Ear, Boston, MA

North Shore – LIJ Health System, Great Neck, NY (516) 465-8509 www.northshorelij.com/

PROSE F.I. Proctor Foundation at University of California, San Francisco, CA (415) 476-7767 www.proctor.ucsf.edu

Weill Cornell Eye Associates, Weill Cornell Medical College, New York, NY (646) 962- 2020 http://weillcornelleye.org

Wilmer Eye Institute at Johns Hopkins, Baltimore, MD (410) 955-5257 www.hopkinsmedicine.org/wilmer

BostonSight™ International PROSE Network As of December 2012, there are five international locations that offer PROSE treatment. Each PROSE provider is independently operated, managing scheduling, insurance and ongoing care.

LV Prasad Eye Institute , Hyderabad, India Phone: 40-3061-2332, 2624 (country code = 91) Website: www.lvpei.org

Nagoya Eye Clinic , Aichi, Nagoya, Japan Phone: 52-872-0490 (country code = 81) Email: sawada@lasik.jp

Noor Eye Hospital , Tehran, Iran Phone: 0098-21-8843-7892 (country code = 98) Website: www.noorvision.com

Sankara Nethralaya,

Chennai, India Phone: 44-4227-1930 or 44-2827-1616, Ext. 1230/1241 (country code = 91) Website: www.sankaranethralaya.org

The Eye Super Specialities (TESS) , Mumbai, India Phone: 22-2102-5070 (country code = 91) Website: http://tessindia.com

Alcon Cares Patient Assistance Program

Alcon provides assistance with eye medications. The medication is sent to either the doctor’s office or the patient’s home. A new application is needed for each refill. Visit the Alcon website to apply.

Scleral Lens Providers

Arizona

www.excellenceineyecare.com

California

PROSE Provider
Dr Gloria Chiu,
OD 1450 San Pablo St, #4704
Los Angeles, CA 90033

Phone: (323) 442-6377 Email: gchiu@doheny.org

Florida

Snapper Creek Professional Center
7800 SW 87th Ave. Suite B-270
Miami, Florida 33173
Phone: (305) 271-8206  Website: http://www.eyefreedom.com/

Georgia

Emory Eye Center
Atlanta, GA Phone: (404) 778-2020
Website: www.eyecenter.emory.edu

Iowa

Christine W Sindt OD FAAO University of Iowa Hospitals and Clinics Director,
Contact Lens Service Assistant Professor of Clinical Ophthalmology
200 Hawkins Dr
Iowa City, IA 52242
Clinic phone: (319) 356-2916 Scheduling: (319) 356-2852
Website: http://www.uihealthcare.com/depts/med/ophthalmology/contactlens/examinfo.html

Massachusetts

Dr. Janis Cotter has been fitting gas permeable scleral contact lenses to diseased eyes for almost 20 years. Gas permeable scleral lenses may be the solution when other contact lenses have failed.

Dr. Janis Cotter
Parkway EyeCare
80 Broadway Revere, MA 02151
Phone: 781-289-7929 Email: parkwayeyecare@aol.com
Website: www.parkwaysclerals.com

Michigan

Dr. Dalia K. Warner Michigan Corneal Consultants has three offices:

29201 Telegraph Road, Suite 101,
Southfield, Michigan 48034-7630
Phone: 248 350-1130

21000 E Twelve Mile Road, Suite 103,
St. Clair Shores, Michigan 48081
Phone: 586 447-8939
19853 West Outer Drive, Suite 102,
Dearborn, Michigan 48124
Phone: 313 565-6102

Ohio

Gregory W. DeNaeyer, O.D. Clinical Director
262 Neil Avenue, Suite 262
Columbus, Ohio 43215
Phone: 614.228.4700 ext. 243 Fax: 614.221-0138 (Fax)
Email: gdenaeyer@ArenaEyeSurgeons.com
Website: www.scleralcontactlenses.net

Tennessee

Jeffrey Sonsino, O.D., F.A.A.O. Assistant Professor
Director, Scleral Lens Clinic Vanderbilt Eye Institute
2311 Pierce Ave Nashville, TN 37232 Phone: 615-936-2020

Texas

Greg Gemoules, O.D.
712 South Denton Tap Road
Coppell, Texas 75019
Phone: 972.462.7311 Website: www.coppellfamilyeyecare.com

Baylor College of Medicine
7900 Cambridge Street
Houston, TX 77030
Fitting Doctor: Anisa Gire, O.D.
Contact Admin: Rhonda Releford
Phone: 713-798-6109

United Kingdom

Innovative Sclerals Ltd.
Dr. Ken W. PULLUM
26a Ware Road, Hertfort, Herts. SG14 7HH
Phone: +44 (0)1992-559001 Fax: +44 (0)1992-501892
Email: ken@sclerals.com
Website: http://sclerals.com

Israel

Microlens LTD Shmuel behrman BSc FBCO, Ortenberg Ilya MSc
9, Liberman Street 64243
Tel-Aviv 03-523-9464 Website: www.microlens.co.il
Email: microlen@zahav.net.il

India

Chandrashekhar Chawan PhD Optometrist & Ocularist
Director Clinical Operations
108 Falcon Court, Hari Om Nagar,
Mulund (E), Mumbai – 400081
India Phone: +91 22 25327459 Email: shekhar@shekhareye.com

Australia

Don Ezekiel
Scleral contact lenses
Perth, Australia
Email: dfezek@gelflex.com