SJS/TEN Support
You are not alone!
The Stevens-Johnson Syndrome Foundation has an online support group.
We are also on facebook.
There are numerous support group facilitators around the world.
Below is a list of resources
Emotional support is available to you locally through our volunteer support group facilitators.
Alaska
Dawn Bundick
Email: dbundick@gci.net
Arkansas
Debra Moulton
Email: moultondebra@yahoo.com
California
Kamna Narain
Phone: (925) 216-4746
Email: kamnanarain@yahoo.com
Jamie Barrara
Southern California, LA Area
Phone: (951) 443-3252 or (951) 956-5077
Phone calls in Friday and Saturday 6pm to 9pm
Email: perrisafterdark@hotmail.com
Jeanne Packey
Phone: (559) 840-1327
Email: packey2468@yahoo.com
Central California
Colorado
Jean McCawley
Westminster, CO
Phone: (303) 635-1241
Email: sjsupport@aol.com
Connecticut
Grace Adley
Phone: (203) 430-9014
Email: sjsgrace64@aol.com
Florida
Sonia Francis-Berges
South Florida
Email: carolcitymama@hotmail.com
Georgia
April Robinson
Atlanta, GA
Phone: (404) 968-3502
Email: april_jones1@hotmail.com
Tikeenia Campbell White
Savannah, GA
Phone: (912) 925-0714
Email: keeny333@yahoo.com
Kansas
Nichole Willis
Halsted, KS
Phone: (316) 833-3760
Email: nknbwillis@att.net
Maryland
Jill Kleeman
Owings Mills, MD
Phone: (410) 356-8933
Email: msstationery2@comcast.net
Michigan
Jami L. Klein
Athens, MI
Phone: (269) 729-4148
Email: Jamilynn42@yahoo.com
Cindy McNally
Detroit area
Phone 1: (989) 737-8321
Email: cindywyliemcnally@aol.com
Minnesota
Cheri O’Neill
Detroit Lakes, MN
Phone: (218) 847-4773
Email: dance@tekstar.com
Missouri
Michelle Riley
Barnhart, MO
Phone: (636) 467-5790
Email: mdawnjames@yahoo.com
Nevada
Marla Daniel
Las Vegas, NV
Phone: (702) 349-8122
Email: marlafd@yahoo.com
Las Vegas
Elizabeth Scarantino
Phone: (702) 457-6047
Email: elizabethscarantino@yahoo.com
New Jersey
Regina Adamousky
Edison, NJ
Phone: (908) 227-0128
Email: reg29320@yahoo.com
North Carolina
Mary J Quick
Durham, NC
Phone: (919) 384-9471
Email: Kirasims@yahoo.com
Ohio
Becky Lucas
Westerille, Ohio
Phone 1: (614) 891-1840 (home)
Phone 2: (614) 325-0417 (cell)
Oklahoma
Donna Pittman
Oklahoma City, OK
Phone: (405) 631-8022
Email: tyger4@aol.com
Oregon
Robert McMillen
Beaverton, OR
Phone: (503) 356-8511
Email: Bob@alltech1.com
Pennsylvania
Christine Ballentine
Philadelphia, PA
Phone: (215) 331-1055
Email: ballentine@blankrome.com
John Hornberger
Central Pennsylvania’s Susquehanna Valley
Phone: (570) 648-3208
Email: jrhorn@ptd.net
Mark Pilarski
Pittsburgh, PA
Phone: (724) 449-0093
Email: markdp21@yahoo.com
South Carolina
Pam Shields
Boiling Springs, SC
Phone: (864) 578-3142
Email: shieldsp@charter.net
Texas
Mary (Katie) Niemeyer
Austin, TX
Phone: (512) 825-3930
Email: Jakaeab@mindspring.com
Lisa Reyna
Houston, Texas
Phone: (713) 988-5449
Email: LLreyna@yahoo.com
Sabrina Reyna
Victoria, TX
Phone: (361) 218-7363
Email: svasquez0714@gmail.com
Utah
Bridget Stout
Phone: (801) 214-5972
Email: bes120457@gmail.com
Virginia
Tellis (Ted) LaMar Jr.
809 Madison Ave. NW
Roanoke, VA. 24016
Email: tlamarjr@gmail.com
Deborah Bareika
Suffolk, VA
Phone: (757) 745-0135
Email: dbareika@yahoo.com
Wisconsin
Kendra Schmidt
Menasha, WI
Phone: (920) 734-2628
Email: Kendraschmidt@new.rr.com
Mexico
Veronica Ferreyro Salazar
Phone: (55) 4624-1478
Email: veronica@sindromestevensjohnson.com
Website: www.sindromestevensjohnson.com
Support Group: [Click here] for SJS Spanish Support Group
Place: Mexico City
Maria Teresa González Méndez
Phone: 52 984 803-2349
Email: maytegonzalezmendez@hotmail.com
Playa del Carmen, Quintana Roo
Adrian Navvaro
Phone: 33 1660 3256
Email: janux.gdl@gmail.com
Guadalajara, Mexico
Canada
Helen Milne
Victoria, BC
Phone/Fax: (250) 474-0898
Email: milnesjs@shaw.ca
Website: http://milnesjs.com/
France
Edgard Devaux
France
Phone: 08 11 03 46 48 , 06 87 57 59 99
Email: edgard_devaux@yahoo.fr
Holland
Pieter Hoeberichts
Meeuwenlaan 49
2352 CR Leiderdorp
Phone: **3171 5231944
Mobile: **316 18554541 Email: sjsupport@live.nl
Italy
Zora
Phone: 349 505 72 32
Skype name: tatipapounette
Email: zora.kacemi@sjlionlus.it
Website: http://www.sjlionlus.it/
Scotland
Carol Kerr
Phone: 01292263699
Email: carol.kerrl@hscali.co.uk
Sweden
Elisabeth
Website: Swedish SJS/TEN Support Group
United Kingdom
Nadier Lawson
SJS Awareness UK
Email: info@sjsawareness.org.uk
Website: www.sjsawareness.org.uk
Mobile: 07507 85 55 58