https://redcap.vanderbilt.edu/surveys/?s=WDKRMTR919

http://sjsupport.org/wp-content/uploads/2020/10/Revisedsurvivorflyer_QRS-1-1.pdf

We are recruiting individuals who have been diagnosed with Stevens-Johnson syndrome and toxic epidermal necrolysis (SJS/TEN) for a national study to look at genetic risk and complications of SJS and TEN. SJS/TEN is a severe reaction associated with drugs such as allopurinol, trimethoprim-sulfamethoxazole (Bactrim) and drug for seizures or mood such as lamotrigine, carbamazepine, oxcarbazepine and phenytoin.

THIS STUDY REQUIRES NO IN PERSON VISITS and:

➢      Relevant medical records from your SJS/TEN admission which will be de-identified

➢      Single saliva sample collected by yourself in Oragene-500 (provided) for DNA test

➢      Completion of questionnaires about health following diagnosis of SJS and TEN.Who can participate:

➢      Adults and children self-identified to have had SJS or TEN

➢      Willingness to sign informed consent to participate in a research study