We are recruiting individuals who have been diagnosed with Stevens-Johnson syndrome and toxic epidermal necrolysis (SJS/TEN) for a national study to look at genetic risk and complications of SJS and TEN. SJS/TEN is a severe reaction associated with drugs such as allopurinol, trimethoprim-sulfamethoxazole (Bactrim) and drug for seizures or mood such as lamotrigine, carbamazepine, oxcarbazepine and phenytoin.
THIS STUDY REQUIRES NO IN PERSON VISITS and:
➢ Relevant medical records from your SJS/TEN admission which will be de-identified
➢ Single saliva sample collected by yourself in Oragene-500 (provided) for DNA test
➢ Completion of questionnaires about health following diagnosis of SJS and TEN.Who can participate:
➢ Adults and children self-identified to have had SJS or TEN
➢ Willingness to sign informed consent to participate in a research study